Member Organizations 

Applied Self-Direction

Applied Self-Direction’s mission is to promote self-direction so individuals have the choice and control to live the lives they want. We are the training, technical assistance, and membership arm of the National Resource Center for Participant-Directed Services (NRCPDS). We provide practical expertise to create and operate self-direction programs that run effectively and efficiently.

Autistic Self Advocacy Network 

The Autistic Self Advocacy Network is a 501(c)(3) nonprofit organization run by and for autistic people. ASAN was created to serve as a national grassroots disability rights organization for the autistic community, advocating for systems change and ensuring that the voices of autistic people are heard in policy debates and the halls of power.

Autism Society

The Autism Society, the nation’s leading grassroots autism organization, exists to improve the lives of all affected by autism. We do this by increasing public awareness about the day-to-day issues faced by people on the spectrum, advocating for appropriate services for individuals across the lifespan, and providing the latest information regarding treatment, education, research and advocacy.

National Down Syndrome Congress

The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome.The vision of the NDSC is a world with equal rights and opportunities for people with Down syndrome.

National Disability Institute

The mission of National Disability Institute is to build a better economic future for Americans with disabilities. We envision a world where people with disabilities have equal opportunity to achieve financial stability and independence as people without disabilities. NDI has identified three enduring values that guide all decision making and activities and will help set strategic direction for the future.
The National Rehabilitation Association (NRA) The NRA is the oldest professional member organization in the United States that advocates for the rights of individuals with disabilities while also promoting high quality, ethical, and collaborative practice across the rehabilitation profession. The NRA, comprised of counselors, educators, researchers, and diverse agents of community integration, is committed to continuously impacting and improving upon the multifaceted conditions, across our society, necessary to enhance quality of life of individuals with disabilities, their families, and our communities.


Founded in 1975, TASH advocates for human rights and inclusion for people with significant disabilities and support needs – those most vulnerable to segregation, abuse, neglect and institutionalization. TASH works to advance inclusive communities through advocacy, research, professional development, policy, and information and resources for parents, families and self-advocates.

The Institute for Educational Leadership

For a half-century, the Institute for Educational Leadership has championed the need for leaders at all levels to shake off their institutional constraints and work across boundaries to address the needs of young people and their families. Bound by no constituency, IEL serves as a catalyst that helps policymakers, administrators, and practitioners at all levels to bridge bureaucratic silos and undo gridlock to improve outcomes for all young people and their families.

The National Association of State Directors of Developmental Disabilities Services

The NASDDDS mission is to assist member state agencies in building person-centered systems of services and supports for people with developmental disabilities and their families.

The National Organization on Disability

NOD is a private, non-profit organization that promotes the full participation and contributions of America’s 56 million people with disabilities in all aspects of life. Today, NOD focuses on increasing employment opportunities for the 79 percent of working-age Americans with disabilities who are not employed.

Board Members

Madeleine Will, President/Founder

Heather Sachs, Vice President; National Down Syndrome Congress

Barb Trader, Treasurer

Kim Musheno, Secretary; Autism Society

Julia Bascom, Member At-Large, Autistic Self-Advocacy Network (ASAN)

David Hoppe, Member At-Large

Bill Kiernan, Member At-Large

David Mank, Member At-Large

Jenny Stonemeier, Member At-Large

Michael Yudin, Member At- Large

Policy Advisor

Alison Barkoff


Education is a fundamental component of preparing all children, regardless of disability status, for lives in our communities. The Collaboration advocates for inclusive education practices and high expectations for students with disabilities.


CPSD presumes competence in the ability of all citizens with significant disabilities to work and live independently in integrated settings and to contribute meaningfully in their communities. Personal autonomy, access, accountability, and responsibility over one’s life decision-making processes result in better outcomes and improved quality of life for people with significant disabilities.


The Collaboration came together around Employment Policy as the critical lynchpin to ensure people with significant disabilities are included in their communities.  The Collaboration embraces the concept of “Employment First” which is a paradigm that presumes that all people, including people with the most significant disabilities, can work for competitive wages and in their community, given the proper supports and services.


Providing opportunities for people with significant disabilities to save is critical to ensuring that individuals attain economic empowerment.  Current policy often requires people with significant disabilities live in poverty in order to receive the services they need to fully participate in their communities, or receive the medical care they need.